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NIH Data Management & Sharing Policy

A guide addressing the new NIH Data Management & Sharing Policy going into effect Jan. 25, 2023.

Sharing Data and How to Select a Data Repository

 

What do you have to do?

Complete actions included in approved Data Management and Sharing Plan. 

Include data management updates in your annual progress report. 

Who is responsible for managing and sharing your data?

The entire research time can play a role in managing research data. Data management can be complex and requires early planning, standardized procedures, and clarity of roles for each member of the team. It is important to begin planning for your data before you start collecting data. 

When do you share your data?

Data sharing is required upon publication of the findings in a peer-reviewed journal OR the end of the grant whichever happens first.

Where should you share your data?

For most grants, NIH does not require a specific repository for data sharing. The chart below outlines the various types of data repositories. For more information on what to look for when selecting a repository for your data we recommend reviewing NIH Supplemental Information: Selecting a Repository for Data Resulting from NIH-Supported Research.

 

Method Pros Cons Example
Institutional data repository
  • Built-in funding, continued support
  • Metrics available
  • Local assistance from Library Services
  • Children's Mercy branding on page
  • Options for restricted access
  • Less likely to accept sensitive data
  • Less likely to accept extra large data sets
SHARE@Children's Mercy - Children's Mercy Kansas City's institutional data repository 
Disciplinary  repository
  • Developed for researchers in a given field
  • Citations can be tracked, depending on platform
  • Metrics may be available depending on platform
  • Platform may stop hosting data
  • May cost additional fees to deposit
  • May or may not provide long term preservation 

Dryad - a STEM data repository

Qualitative Data Repository - a qualitive repository with restricted access options

Generalist repository
  • Good for interdisciplinary scholarship
  • Citation can be tracked, depending on platform
  • Platform may stop hosting data
  • Platform may change terms of service 
  • May cost additional fees to deposit 
Comparison Chart created out of an NIH workshop outlining the attributes of top generalist repositories 
Governmental repository
  • Good repository documentation and supporting information
  • Likely will continue to be supported
  • Citations can be tracked, depending on platform
  • Repositories do not yet exist for all types of data
  • May not be prepared for long term preservation
  • May only accept research funded by specific granting agency
NIH Supported Repositories - a list of NIH supported repositories focused on health data